Epilepsy ACT

Volunteer Powered iconThis charity relies heavily on the incredible dedication of volunteers. It means their operations are significantly powered by volunteer efforts, where the collective contribution of volunteers is either substantial compared to paid staff, or their work is entirely run by volunteers. Your time and skills could make a huge difference here!Tax Deductible iconThis charity or fund is currently recognised by the Australian Taxation Office (ATO) as a Deductible Gift Recipient (DGR). Donations of $2 or more made to this entity are tax-deductible for the donor. This status is typically derived from official ABR (Australian Business Register) data and signifies eligibility for DGR status.
Website:
www.epilepsyact.org.au
ABN:
11 477 115 050
Location:
Holder, ACT
Charity Size:
SmallSmall charities, those with an annual revenue of under $500,000, are often the unsung heroes, deeply rooted in local communities. Think of your local soup kitchen, the neighbourhood environmental group, or the tiny organisation providing crucial support to families in crisis. These charities punch above their weight, delivering highly personalised services and fostering strong connections.
Registration Status:
Registeredthe charity’s registration is active
Religious Affiliation:
No Religious AffiliationThis category comprises charities that do not have any religious affiliation. They operate independently of specific religious doctrines and focus on their mission based on secular principles
DGR Status:
Tax DeductibleThis charity or fund is currently recognised by the Australian Taxation Office (ATO) as a Deductible Gift Recipient (DGR). Donations of $2 or more made to this entity are tax-deductible for the donor. This status is typically derived from official ABR (Australian Business Register) data and signifies eligibility for DGR status.
verview of the Year: The 2023/24 financial year marked a period of incredible achievements and meaningful community impact for Epilepsy ACT. This year was also the final year of funding from the Epilepsy Smart Australia Program, and while our work continues, I would like to take this moment to express our deep gratitude to the Australian Government for supporting our programs over the years. Their commitment has helped us to provide invaluable resources, build awareness, and extend our reach within the Canberra region. Events and Community Engagement: Our annual events and engagement activities continued to foster connection, raise awareness, and drive our mission. The Christmas in July Party, a highlight for many, was a great success. With over 70 attendees, we enjoyed a day filled with kitemaking and flying under perfect weather conditions. It was a beautiful day for making connections, building community, and enjoying the outdoors. In March, we held the annual Walk for Epilepsy around Lake Burley Griffin, complete with family activities and a strong turnout. Thank you to all our wonderful volunteers, supporters, and participants who made this event a heartening display of community solidarity. This year s event raised $[insert amount], and every dollar goes toward supporting epilepsy awareness and services. We re especially grateful to our friends at the Tradies Club in Dickson and the many pharmacies across Canberra, Queanbeyan, and Bungendore who sold our soft purple cows and puppies, helping to generate awareness and muchneeded funds for our programs. Westfield Woden also played a pivotal role, graciously allowing us to sell plush toys throughout the centre. Training and Outreach: Epilepsy ACT provided an array of training sessions over the past year, addressing the needs of schools, workplaces, and private groups across the region. These sessions empower people to better understand and support those living with epilepsy, building a more inclusive community. Additionally, we participated in the launch of the Child UnLimited initiative at Parliament House, aligning ourselves with organisations dedicated to making a difference in the lives of young people. Media and Awareness Initiatives: Throughout the year, Epilepsy ACT was active in the media, participating in four radio interviews, including an important segment on ABC Canberra discussing SUDEP (Sudden Unexpected Death in Epilepsy) and the Make March Purple campaign. Riotact also supported us with articles and homepage features, helping to shed light on epilepsy stigma and SUDEP. These public platforms are essential to spreading awareness, and we thank our media partners for helping us to amplify these important messages.

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Staffing DetailsCharities report the number of full-time, part-time, and casual employees, as well as volunteers, for the last pay period of their reporting year.

MetricCharity ValueThis charity's own reported figure, taken from its most recently lodged Annual Information Statement (AIS) with the ACNC.Average (Small)The average figure across all Australian charities of the same size category (Small, Medium, or Large), based on their most recently lodged Annual Information Statements.
Full Time035
Part Time40
Casual10
Volunteers5027
Full-Time Equivalent (FTE)Full-Time Equivalent (FTE) is a calculation that represents the number of full-time employees a charity would have if you combined the hours of all its part-time and casual staff.4.152.16
FTE to Volunteer RatioThis ratio compares the number of volunteers to the number of paid full-time equivalent staff. A higher percentage indicates a greater reliance on volunteers.1205%5057%
Avg Employee Expenses per FTEThis is the average amount of employee-related expenses (like salary and benefits) spent per full-time equivalent staff member.$79,300$81,231

Related Party TransactionsA transaction between the charity and a person or entity closely connected to the charity, such as a board member, a major donor, or their family members. These must be disclosed to ensure transparency.

Reporting on related party transactions is not required for small charities.

Key Management Personnel (KMP)Key Management Personnel (KMP) are the people who have the authority and responsibility for planning, directing, and controlling the charity's activities. This typically includes board members and senior executives.

Reporting on Key Management Personnel remuneration is only required for large charities.

Most Recent Annual Information Submitted 2024

Lodgement was submitted on time.

Reporting Requirements for a Small Charity (Annual revenue under $500,000)

Small charities must submit an Annual Information Statement (AIS) but are not required to submit a full financial report. This means they do not have to provide a detailed breakdown of assets and liabilities or submit audited financial statements, though they must keep financial records.

CategoryCharity ValueThis charity's own reported figure, taken from its most recently lodged Annual Information Statement (AIS) with the ACNC.Australian Average (Small)The average figure across all Australian charities of the same size category (Small, Medium, or Large), based on their most recently lodged Annual Information Statements.
Net Surplus/DeficitThe difference between a charity's total income and its total expenses for the reporting period. A surplus means income was greater than expenses, while a deficit means expenses were greater than income.$2,662$1,821
Net Assets/LiabilitiesThe value of what a charity owns (assets) minus what it owes (liabilities). This is also known as total equity or net worth, representing the overall financial position.$404,699$0
Total RevenueTotal Revenue plus Other Income. It represents the total income before any expenses are deducted.$401,042$79,129
Revenue from GovernmentFunding received from local, state, or federal government bodies, including grants and contracts for services. $304,340 $12,204
Donations and BequestsIncome received from individuals, foundations, or corporations in the form of gifts, donations, and bequests (gifts left in a will). $45,420 $28,746
Revenue from Goods and ServicesIncome generated from selling goods or providing services that are part of the charity's mission or fundraising activities. $13,772 $17,922
Revenue from InvestmentsIncome earned from the charity's investments, such as interest from bank accounts, dividends from shares, and rent from property. $0 $7,090
Other RevenueIncome from any other sources that don't fit into the main categories. $37,510 $7,559
Other IncomeOther non-operating income, such as one-off gains from the sale of assets. $0 $5,607
Total Gross IncomeTotal Revenue plus Other Income. It represents the total income before any expenses are deducted. $401,042 $79,129
Total ExpensesThe total cost incurred by the charity in carrying out its activities, including program, administrative, and fundraising costs.$398,380$77,309
Employee ExpensesAll costs related to paying staff, including salaries and wages, superannuation, and other employee benefits. $329,096 $19,898
Grants and Donations (Australia)Funds and donations distributed by the charity to other organisations or individuals within Australia to support their work. $69,284 $14,184
Grants and Donations (Overseas)Funds and donations distributed by the charity to other organisations or individuals outside of Australia for international aid and development. $0 $3,352
Other ExpensesAll other operational expenses not classified elsewhere, such as administration, fundraising, and program-specific costs. $0 $39,874
Total AssetsThe total value of everything the charity owns that has monetary value, including cash, investments, buildings, and equipment.$446,540$635,756
Total LiabilitiesThe total amount of money and obligations the charity owes to others.$41,841$69,335