Osteogenesis Imperfecta Society Of Australia (Brittle Bones)
Also known as:
Society President
Supporting children and adults diagnosed with Osteogenesis Imperfecta, and their families providing information and support about the condition to newly diagnosed families providing support to parents when the diagnosis is made prenatally providing funding for medical research into management on possibly prevention of the condition providing grant funding to families to assist with buying mobility equipment planning/hosting a biannual national conference for families to network and hear from medical professionals regarding OI diagnosis, management and prevention.
Only Active in Australia
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